weird. ok.. so the HNPP test came back negative - which is the good news. Why my nerves seem to be sensitive at times? Not sure. My arms haven't been 'bad' lately (ie no flare up in a couple months now although I still feel it) knock on wood.
Left arm that I had the transposition on I've tried to especially sleep with it straight. I thought I was but my Wife every now and then wakes me up when she sees I'm sleeping with them bent.
Another interesting thing I noted - when we go surfing in cold water and then come out once I'm quite cold - my hands tingle like crazy. its so intense its such a weird feeling. It doesn't hurt.. just weird.. I know : )
Friday, April 30, 2010
Tuesday, April 20, 2010
HNPP?
Ok so my arm I had surgery on still acts up at times. It's better than the other hand but I do get weird twitches in it. After having surgery and being great for a year and then acting up again made me wonder what the heck is going on. I've seen several doctors and no one seemed to give me anything decent. My EMGs came back fine but something is definitely not OK. Finally I went to a neurologist a friend highly recommended. He said it's possible I have HNPP which I had never heard of. It basically means genetically I am more prone to pressure palsies. Since my arms aren't the only thing affected this does make sense, so we got a genetic test done. I'm awaiting the results.
This is defined as:
What is hereditary neuropathy with liability to pressure palsies?
Hereditary neuropathy with liability to pressure palsies is a disorder that affects peripheral nerves. These nerves connect the brain and spinal cord to muscles as well as sensory cells that detect touch, pain, and temperature. In people with this disorder, the peripheral nerves are unusually sensitive to pressure.
(from http://ghr.nlm.nih.gov/condition=hereditaryneuropathywithliabilitytopressurepalsies)
Hereditary neuropathy with liability to pressure palsies causes recurrent episodes of numbness, tingling, and/or loss of muscle function (palsy). An episode can last from several minutes to several months, but recovery is usually complete. Repeated incidents, however, can cause permanent muscle weakness or loss of sensation. This disorder is also associated with pain in the limbs, especially the hands.
This is defined as:
What is hereditary neuropathy with liability to pressure palsies?
Hereditary neuropathy with liability to pressure palsies is a disorder that affects peripheral nerves. These nerves connect the brain and spinal cord to muscles as well as sensory cells that detect touch, pain, and temperature. In people with this disorder, the peripheral nerves are unusually sensitive to pressure.
(from http://ghr.nlm.nih.gov/condition=hereditaryneuropathywithliabilitytopressurepalsies)
Hereditary neuropathy with liability to pressure palsies causes recurrent episodes of numbness, tingling, and/or loss of muscle function (palsy). An episode can last from several minutes to several months, but recovery is usually complete. Repeated incidents, however, can cause permanent muscle weakness or loss of sensation. This disorder is also associated with pain in the limbs, especially the hands.
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